Von Hippel-Lindau disease (VHL): monitoring
Written and reviewed by Dr Ibrahim Imam, Consultant Neurologist. Last reviewed .
Von Hippel-Lindau disease (VHL): monitoring. History and physical examination, Pulse and blood pressure. Fully referenced neurology checklist.
Annual monitoring
- History and physical examination
- Pulse and blood pressure
- Catecholamine excess screen
- Plasma free metanephrines
Twice yearly monitoring
Locked: subscribe to see this section.
Two yearly monitoring
Locked: subscribe to see this section.
Other monitoring
Locked: subscribe to see this section.
References
- Daniels AB, Tirosh A, Huntoon K, et al. Guidelines for surveillance of patients with von Hippel-Lindau disease: Consensus statement of the International VHL Surveillance Guidelines Consortium and VHL Alliance. Cancer 2023 (Online ahead of print).
- Louise M Binderup M, Smerdel M, Borgwadt L, et al. von Hippel-Lindau disease: Updated guideline for diagnosis and surveillance. Eur J Med Genet 2022; 65:104538.
- Laks S, van Leeuwaarde R, Patel D, et al. Management recommendations for pancreatic manifestations of von Hippel-Lindau disease. Cancer 2022; 128:435-446.
