Tuberous sclerosis complex (TSC): monitoring

Written and reviewed by Dr Ibrahim Imam, Consultant Neurologist. Last reviewed .

Tuberous sclerosis complex (TSC): monitoring. 3-generation family history. Fully referenced neurology checklist.

Baseline assessments

  • 3-generation family history
  • Blood pressure assessment for hypertension
  • Respiratory function: dyspnoea, cough
  • Renal function
  • Skin examination
  • Neuropsychiatric symptoms: for TAND

Clinical monitoring

Locked: subscribe to see this section.

TAND monitoring

Locked: subscribe to see this section.

Magnetic resonance imaging (MRI) brain monitoring

Locked: subscribe to see this section.

Electroencephalogram (EEG) monitoring

Locked: subscribe to see this section.

Magnetic resonance imaging (MRI) abdomen monitoring

Locked: subscribe to see this section.

Cardiac monitoring

Locked: subscribe to see this section.

Lymphangioleiomyomatosis (LAM) monitoring

Locked: subscribe to see this section.

Acronym

Locked: subscribe to see this section.

References

  1. Northrup H, Aronow ME, Bebin EM, et al. Updated International Tuberous Sclerosis Complex diagnostic criteria and surveillance and management recommendations. Pediatr Neurol 2021; 123:50-66.
  2. Northrup H, Krueger DA; International Tuberous Sclerosis Complex Consensus Group. Tuberous sclerosis complex diagnostic criteria update: recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference. Pediatr Neurol 2013; 49:243-254.
  3. Curatolo P, Moavero R, de Vries PJ. Neurological and neuropsychiatric aspects of tuberous sclerosis complex. Lancet Neurol 2015; 14:733-745.
  4. Amin S, Kingswood JC, Bolton PF, et al. The UK guidelines for management and surveillance of Tuberous Sclerosis Complex. QJM 2019; 112:171-182.

Related checklists

Loading...